Day 95 - 1/12/19
Since the chemo process began, I have had some easy days, some hard days, and some really hard days. Today is one of those really hard days. During the really hard days, it takes every ounce of energy that I have just to manage my fluids and medications. Because of this, not having to worry about eating is a blessing. My daughters and husband make sure I’m eating, and I have easy to prepare foods for me to eat. I am so thankful for everything that my husband and children are doing to make this easier on me.
For the last couple of days, the waves have steadily increased. Leading up to today, they have become massive. I’m praying they will start to subside soon, but it is hard to gauge right now. I’m sleeping most of the day, so I have relief from the pain while I’m sleep. As I drift from sleep to consciousness though, the pains are at their sharpest. Once I’m fully awake, the pains aren’t as sharp. I go ahead and take Tylenol for it because it does give me enough relief to relax.
Once I get a slight break from the waves of pain, I notice the numbing feelings in my hands and feet, and they began to throb. This is called peripheral neuropathy. For this condition, the oncologist nurse suggested B6 vitamins and L-Glutamine powder. Whenever I don’t stay up on these 2 things, I start feeling the numbness, so it is a reminder for me to take the remedies regularly. Once the tingling begins, I start stretching out my limbs. I’m not sure that it’s really doing anything to help, but the tingling decreases when I do it, so I believe there’s some benefit to it.
I don't keep track of my sleep cycles during the really hard days. Time just runs together. The only way I can keep up with my medications is to keep up with my medication log. And for the fluid intake, I measure out the 2 quarts I need--using the variety of things that I drink--and ensure that I'm drinking between my sleep cycles.
This is the system that is and has been working for me...
“In everything we have won more than a victory because of Christ who loves us. I am sure that nothing can separate us from God’s love—not life or death, not angels or spirits, not the present or the future, and not powers above or powers below. Nothing in all creation can separate us from God’s love for us in Christ Jesus our Lord!” Romans 8: 37-39 CEV